PHOTO: Teenager Trapped In The Body Of A 100-Year-Old Due To Rare Genetic Condition Dies Aged 17

Hayley Okines, who suffered a rare genetic condition that gave her the body of a 100-year-old, has died aged 17
Hayley Okines, who suffered a rare genetic condition that gave her the body of a 100-year-old, has died aged 17
A teenager suffering a rare genetic condition that gave her the body of a 100-year-old has died aged 17. Hayley Okines became well-known three years ago when she was part of a documentary about her premature ageing condition. She suffered from the rare disease progeria which ages the body at eight times the normal rate.

Progeria takes its name from the Greek word 'proeros', meaning prematurely old. It involves a mutant protein called progerin that accelerates physical ageing.  There are around 74 known cases of the disease around the world.

But Hayley, from Bexhill, East Sussex, defied the odds to live four more years and even published an autobiography about living with the disease. Last night [April 2] her mother Kerry posted on Facebook: 'My baby girl has gone somewhere better. She took her last breath in my arms at 9.39pm x.'

Today, the Progeria Research Foundation posted on its Facebook page: 'The entire Progeria family mourns together with many as we say goodbye to Hayley Okines, our smart, beautiful and spirited English rose, who passed away today at age 17. 'Gone from our sight, but never our memories, gone from our touch but never our hearts. We will miss you.'

Hayley and her family had fundraised for her medical treatment and to raise public understanding of the condition. Her story was catapulted into the limelight after she starred in documentaries called The Girl who is Older than Her Mother and World's Oldest Teenager: Extraordinary People. Her autobiography, called Old Before my Time, detailed pop-star crushes and a dislike of school.

But it was also a moving insight into how a child copes with a disease which resulted in Hayley having the body of a 105-year-old. In an interview with The Sunday People in 2013, her mother described the hell of living with the disease. 
'The most difficult part is Hayley has the mind of a normal 13-year-old girl locked in an old person's body,' she said. 
Last night her mother Kerry posted on Facebook: 'My baby girl has gone somewhere better. She took her last breath in my arms at 9.39pm x.'
Last night her mother Kerry posted on Facebook: 'My baby girl has gone somewhere better. She took her last breath in my arms at 9.39pm x.'
Hayley suffered from the rare disease progeria which ages the body at eight times the normal rate
Hayley suffered from the rare disease progeria which ages the body at eight times the normal rate
Progeria patients normally die from heart attacks or strokes at an average age of 13. But Hayley defied the odds to live four more years
Progeria patients normally die from heart attacks or strokes at an average age of 13. But Hayley defied the odds to live four more years
Despite pioneering drug treatment in the US that gave her a new lease of life, Hayley was unable to conquer the disease
Despite pioneering drug treatment in the US that gave her a new lease of life, Hayley was unable to conquer the disease
In an interview, Hayley's mother described the hell of living with the disease. 'The most difficult part is Hayley has the mind of a normal 13-year-old girl locked in an old person's body,' she said
In an interview, Hayley's mother described the hell of living with the disease. 'The most difficult part is Hayley has the mind of a normal 13-year-old girl locked in an old person's body,' she said
In her short life, Hayley went swimming with dolphins, travelled all over the world, met Prince Charles, Kylie Minogue and Justin Bieber and starred in several TV documentaries
In her short life, Hayley went swimming with dolphins, travelled all over the world, met Prince Charles, Kylie Minogue and Justin Bieber and starred in several TV documentaries
Hayley even published an autobiography about living with the disease, called Old Before My TimeHayley and her family had fundraised for her medical treatment and to raise public understanding of the condition.




  - Daily Mail, UK









Share on Google Plus

0 comments:

Post a Comment

Thanks For Visiting My Blog...